February 2023
This is rare!
This week's blog is written by our trustee and AKU patient, [...]
November 2022
Happy Garrod Day!
Today is Garrod day, an important event in the history of A [...]
Meet Harriet – AKU PhD Student
Today's blog is written by Harriet Willett, who has just be [...]
September 2022
AKU Counselling Service
The AKU Society provides a free and confidential counsellin [...]
July 2022
Introducing our new trustee: Jess Barnes
We would like to give a warm welcome to our newest trustee, [...]
June 2022
Recap: Brussels AKU Scientific Conference
This week’s blog looks back at our 12th International Confe [...]
May 2022
NAC 10th Anniversary Celebration
In June this year, we are celebrating the 10th anniversary [...]
April 2022
12th International Scientific Conference on AKU Agenda
We are looking forward to welcoming the AKU Scientific comm [...]
January 2022
Say Goodbye To Juliet Rowe – Head Of Fundraising
In this week’s blog, we say goodbye to our Head of Fundrais [...]
November 2021
Meet Denise Higgins – President of the AKU Society North America
Today's blog is written by one of our hardworking volunteer [...]
September 2021
Through The Looking Glass- An AKU Story
This week's blog is written by Lyndsay Close and tells her [...]
July 2021
BBC Radio 4 Success
We are honoured and humbled to announce that we have now ca [...]
The National Alkaptonuria Centre (NAC) & COVID-19
Today's blog is written by Lesley Harrison, the Head of Pat [...]
April 2021
BBC Radio 4 Appeal
We are delighted to announce that we have been selected by [...]
January 2021
Online Mini Patient Workshop
We are delighted to announce that we will be hosting a mini [...]
2020 Christmas Appeal News
The AKU Society team and trustees hope you had a very Merry [...]
COVID-19 January 2021 Update – The AKU Society and The NAC
The AKU Society As you are all aware, Covid-19 has changed [...]
December 2020
Virtual Garrod Day Coffee Morning – On The Day
Last Wednesday was our annual Garrod Day Coffee Morning. Ea [...]
October 2020
A Message From Nick
In today's blog is another opportunity to hear directly fro [...]
September 2020
Meet Marina – AKU Society Student Placement
This weeks blog is written by our placement student, Marina [...]
July 2020
Corporate Partnerships – A Video Appeal
Today's blog is a little different. Below is a video from t [...]
May 2020
Virtual Coffee & a Chat
We are excited to announce we are hosting our first virtual [...]
April 2020
Our Top Tips While Staying At Home
The COVID-19 crisis is a worrying and stressful time for ev [...]
Virtual Fundraising
The COVID-19 pandemic is affecting everyone’s way of life. [...]
March 2020
Cambridge Half Marathon 2020 – On The Day
On Sunday 8th March, our Fundraising Officer Juliet and CEO [...]
February 2020
Ranga: 18 years versus AKU
It seems like yesterday when I met Robert Gregory. He came [...]
January 2020
Jess Barnes – 12 Days of Christmas Sea Swim
Today's blog is written by a long-time friend of the AKU So [...]
December 2019
SONIA 2 and DevelopAKUre – Results
We are delighted to announce that all the data from the SON [...]
AKU Society Brazil – Flavia at the NIH
Today’s blog is written by the head of the Brazilian AKU So [...]
RCNi eLearning Module
Five years ago, we partnered with the Royal College of GPs [...]
November 2019
Eurordis Digital School & RCGP Annual Primary Care Conference 2019
Eurordis Digital School At the start of the month Ciarán ou [...]
October 2019
One Month to Go until Garrod Day!
We are only one month away from Garrod Day! On the 25th Nov [...]
September 2019
Garrod Day Coffee Morning: Tips for a Successful Coffee Morning
We are busy preparing for our annual Garrod Day Coffee Morn [...]
AKU Society upcoming events in Winter 2019
It's another busy few months here at the AKU Society. We ar [...]
Get Involved In Garrod Day 2019
It’s that time of year again; our annual Garrod Day Coffee [...]
August 2019
In Memory of Ann Kerrigan – AKU Champion
We are very sad to announce that Ann Kerrigan passed away l [...]
Meet Maria – AKU Society Student Placement
Hi! My name is Maria and I am currently a 2nd-year student [...]
DevelopAKUre – A History
Today's blog is written by Nick Sireau the Chair and CEO of [...]
July 2019
Sociological Study on Treatment for AKU in the UK
My name is Alev Sen. I’m the main researcher on a study of [...]
Other Ways to Give to the AKU Society
In this week’s blog, we explain how you can donate to the A [...]
June 2019
Stand Up To AKU Comedy Night – Liverpool 2019
Our ‘Stand Up to AKU’ comedy night was on Sunday the 9th of [...]
RCN Congress May 2019
The Royal College of Nursing (RCN) Congress is the biggest [...]
May 2019
RE(ACT) Congress America 2019 – Toronto
Rare disease research has grown significantly over the past [...]
Donating to us via Facebook
Exciting news, the AKU Society now accepts Facebook Donatio [...]
April 2019
Stand Up to AKU Comedy Night 2019 – Raffle Prizes!
Our annual ‘Stand Up to AKU’ night is rapidly approaching a [...]
Meet the patient – Simon Laxon
Today’s blog is written by AKU patient Simon Laxon. In it, [...]
Stand Up To AKU 2019!
We are excited to announce that our Stand up to AKU Comedy [...]
Luton Health Awareness Event
On Tuesday the 26th of March, our Patient Support Manager, [...]