Support

The AKU Society aims to provide assistance, information, and resources for all individuals living with AKU. Whether you are a patient, caregiver, or healthcare professional, we offer various forms of support to help you navigate the challenges associated with AKU.

AKU Counselling

Living with AKU can be stressful and challenging in all sorts of ways. It can impact...

Social and Financial Information

AKU is a debilitating disease. It can leave patients unemployed, immobile and in need of care. If you are...

Patient Communities

Rare disease patients often report feeling lonely and isolated due to the lack of awareness and understanding surrounding their....

Downloadable Resources

This page provides resources for AKU patients, carers and their families. The information on this page includes leaflets about AKU and...

Information for international patients

We have worked to establish a number of international AKU Societies across the world who we assist to provide...

AKU Registry

If you have been diagnosed with AKU anywhere in the world, you can make an important contribution to our research...

An introduction to alkaptonuria and nitisinone