Our Funders

We would like a say a huge thank you to the trusts and foundations below for supporting our work.

The National Lottery Community Fund

Funding for our Body to Mind Programme & our 2021 International Patient Workshop

Seventh Framework Programme

DevelopAKUre project. Our clinical trial into the drug nitisinone.

The Royal Liverpool & Broadgreen Hospitals

Patient support before, during and after NAC clinics

Society Of Inborn Errors Of Metabolism

International Patient Workshop 2021

Cambridgeshire Coronavirus Community Fund

Body to Mind counselling & Covid support

European Joint Programme of Rare Diseases

2021 International AKU Scientific Conference

Cycle Pharmaceuticals

2021 International Patient Workshop

The Sylvia Adams Charitable Trust

Breaking Down Barriers Project. Overcoming barriers to information.

Disorders UK

General funds

Rosetrees Medical Research Trust

2021 International Patient Workshop

Genetic Disorders UK – Jeans For Genes Day

Supporting our SOFIA-Paediatric study into when AKU starts in children.

The Hospital Saturday Fund

Supporting our SOFIA-Paediatric study into when AKU starts in children.

Vitaflo Innovation
in Nutrition

Supporting our patients to follow a protein-controlled diet

SOBI Innovation Treatment Access

International AKU Patient Workshop & AKU Childrens Book

The Music Sales Charitable Trust

Funding towards the SOFIA paediatric stud

The D’Oyly Carte Charitable Trust

2021 UK Patient Workshop

The James Tudor Foundation

UK patient workshop

The Austin and Hope Pilkington Trust

Browsealoud & Patient support