by AKU | May 21, 2021 | Uncategorized
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkably interesting account of her father Fred and his experiences with the disease before we had established the National...
by AKU | Apr 23, 2021 | Uncategorized
This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear more about the appeal, and how and when to donate please head here. You can also listen to an audio clip of Jess...
by AKU | Apr 16, 2021 | AKU Blog
We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broadcast their message and calls for support to a large national audience. What is a BBC Radio 4 charity appeal? Since the...
by AKU | Feb 22, 2021 | Uncategorized
In today’s blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-face meetings that have not been able to go ahead due to COVID-19 and lockdowns in the UK. Held on Thursday 11th February,...
by AKU | Jan 22, 2021 | Uncategorized
This week’s blog is written by Professor Joery De Kock and explains his exciting research into a cure for AKU. At the end of this blog, we have included a short paragraph that explains the research in a short and accessible way. It was early 2015 when I became...
