EvolvAKUre: a Darwinian approach to develop a cure for AKU
This week's blog is written by Professor Joery De Kock and explains his exciting research into a cure for AKU. At the end of this blog, we have inclu [...]
AKU Society Christmas Appeal 2020
It's now more than a week since our Christmas appeal launched. Thank you to the people who have donated already. Your donations will help us fund our [...]
Free Virtual Counselling For UK AKU Patients
The AKU Society’s new Telephone and Online Counselling Service is now up and running! This is a free, confidential service for all UK AKU patients an [...]
Garrod Day Coffee Morning 2020 (Virtual Edition)
Our annual Garrod Day Coffee Morning is approaching again! However, this year we are taking a slightly different approach with Garrod Day as we are g [...]
‘Body to Mind Project’ National Lottery Community Fund
Good news! The AKU Society has been awarded a £45,000 grant from the National Lottery Coronavirus Community Support Fund. This emergency COVID-19 fun [...]
The European Medicines Agency’s Decision and Nitisinone
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinio [...]
Black Spots On The White of the Eyes.
We are trying to diagnose new patients in the UK by asking people with black spots on the white of their eyes to send us photos of the black spots to [...]
Dr Andrew Davidson, PhD
Todays blog is written by Dr Andrew Davidson who has recently completed his PhD in AKU and nitisinone. I became a state registered Clinical Scientist [...]
AKU Patients and COVID-19
-----------------Update: 8th October 2020 ---------------- Since our last update, the picture across the country is changing rapidly. Each home natio [...]
Covid-19 (Coronavirus)
As you are all aware, Covid-19 has changed the way a lot of services and organisations work. To ensure the safety of all staff, their loved ones and [...]