by AKU | Feb 9, 2024 | AKU Blog, Uncategorized
Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...
by AKU | Jul 9, 2023 | AKU Blog, Uncategorized
On the 27-28th July we hosted our 13th International Scientific Conference on AKU in Bratislava, Slovakia, which had a focus on treating hypertyrosinaemia in AKU and HT-1. This latest conference was our largest to date, with over 100 attendees from 19 countries...
by AKU | Jan 13, 2022 | Uncategorized
n this week’s blog, we meet Michael Warne, our new Fundraising Officer. A native of Cambridge, Michael joins the team to fill Juliet’s sizeable shoes, who is leaving the AKU Society to travel the world. Juliet will be sorely missed, but we look forward to working with...
by AKU | May 21, 2021 | Uncategorized
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkably interesting account of her father Fred and his experiences with the disease before we had established the National...
by AKU | Apr 23, 2021 | Uncategorized
This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear more about the appeal, and how and when to donate please head here. You can also listen to an audio clip of Jess...
by AKU | Feb 22, 2021 | Uncategorized
In today’s blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-face meetings that have not been able to go ahead due to COVID-19 and lockdowns in the UK. Held on Thursday 11th February,...
