12th International Scientific Conference On AKU
We are delighted to announce the return of our cancelled AKU Scientific Conference. The conference was planned for last year but was delayed due to t [...]
Introducing Michael Warne – Fundraising Officer
In this week’s blog, we meet Michael Warne, our new Fundraising Officer. A native of Cambridge, Michael joins the team to fill Juliet’s sizeable shoe [...]
Fred Tranter – The First AKU Patient To Be Operated On?
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkabl [...]
BBC 4 Radio Appeal – Jess Tells Her Story
This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear [...]
2021 Online Mini Workshop – Round Up
In today's blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-fac [...]
At Home in Lockdown: Tips From A Psychotherapist
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the [...]
EvolvAKUre: a Darwinian approach to develop a cure for AKU
This week's blog is written by Professor Joery De Kock and explains his exciting research into a cure for AKU. At the end of this blog, we have inclu [...]
AKU Society Christmas Appeal 2020
It's now more than a week since our Christmas appeal launched. Thank you to the people who have donated already. Your donations will help us fund our [...]
Free Virtual Counselling For UK AKU Patients
The AKU Society’s new Telephone and Online Counselling Service is now up and running! This is a free, confidential service for all UK AKU patients an [...]
Garrod Day Coffee Morning 2020 (Virtual Edition)
Our annual Garrod Day Coffee Morning is approaching again! However, this year we are taking a slightly different approach with Garrod Day as we are g [...]