Fred Tranter – The First AKU Patient To Be Operated On?
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkabl [...]
BBC 4 Radio Appeal – Jess Tells Her Story
This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear [...]
2021 Online Mini Workshop – Round Up
In today's blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-fac [...]
At Home in Lockdown: Tips From A Psychotherapist
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the [...]
EvolvAKUre: a Darwinian approach to develop a cure for AKU
This week's blog is written by Professor Joery De Kock and explains his exciting research into a cure for AKU. At the end of this blog, we have inclu [...]
AKU Society Christmas Appeal 2020
It's now more than a week since our Christmas appeal launched. Thank you to the people who have donated already. Your donations will help us fund our [...]
Free Virtual Counselling For UK AKU Patients
The AKU Society’s new Telephone and Online Counselling Service is now up and running! This is a free, confidential service for all UK AKU patients an [...]
Garrod Day Coffee Morning 2020 (Virtual Edition)
Our annual Garrod Day Coffee Morning is approaching again! However, this year we are taking a slightly different approach with Garrod Day as we are g [...]
‘Body to Mind Project’ National Lottery Community Fund
Good news! The AKU Society has been awarded a £45,000 grant from the National Lottery Coronavirus Community Support Fund. This emergency COVID-19 fun [...]
The European Medicines Agency’s Decision and Nitisinone
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinio [...]