NAC 10th Anniversary Celebration
In June this year, we are celebrating the 10th anniversary of the National Alkaptonuria Centre (NAC), which has played a pivotal role in supporting a [...]
In June this year, we are celebrating the 10th anniversary of the National Alkaptonuria Centre (NAC), which has played a pivotal role in supporting a [...]
We are looking forward to welcoming the AKU Scientific community to Brussels next month for our 12th International Scientific Conference on AKU. Thi [...]
We are delighted to announce the return of our cancelled AKU Scientific Conference. The conference was planned for last year but was delayed due to t [...]
In this week’s blog, we say goodbye to our Head of Fundraising, Juliet Rowe, who started her role in September 2018 – what a whirlwind it’s been! W [...]
Today's blog is written by one of our hardworking volunteers for our exciting upcoming crowdfunding campaign to raise money for the first Global Blac [...]
This week's blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in [...]
We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including [...]
Today's blog is written by Lesley Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for [...]
We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broad [...]
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the [...]