AKU Counselling Service
The AKU Society provides a free and confidential counselling service for all those impacted by AKU, whether you or a family member are newly diagnose [...]
Introducing our new trustee: Jess Barnes
We would like to give a warm welcome to our newest trustee, Jess Barnes. She joins us as the first female on the board and we are delighted to have h [...]
Recap: Brussels AKU Scientific Conference
This week’s blog looks back at our 12th International Conference on AKU. After two years of COVID, we were finally able to reunite the AKU scientific [...]
NAC 10th Anniversary Celebration
In June this year, we are celebrating the 10th anniversary of the National Alkaptonuria Centre (NAC), which has played a pivotal role in supporting a [...]
12th International Scientific Conference on AKU Agenda
We are looking forward to welcoming the AKU Scientific community to Brussels next month for our 12th International Scientific Conference on AKU. Thi [...]
12th International Scientific Conference On AKU
We are delighted to announce the return of our cancelled AKU Scientific Conference. The conference was planned for last year but was delayed due to t [...]
Say Goodbye To Juliet Rowe – Head Of Fundraising
In this week’s blog, we say goodbye to our Head of Fundraising, Juliet Rowe, who started her role in September 2018 – what a whirlwind it’s been! W [...]
Meet Denise Higgins – President of the AKU Society North America
Today's blog is written by one of our hardworking volunteers for our exciting upcoming crowdfunding campaign to raise money for the first Global Blac [...]
Through The Looking Glass- An AKU Story
This week's blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in [...]
BBC Radio 4 Success
We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including [...]