Liesbeth’s research visit to the University of Liverpool

Liesbeth’s research visit to the University of Liverpool

Our latest blog is written by Liesbeth Desmet, a PhD student at the Vrije Universiteit Brussel (VUB). She recently participated in our early-stage researcher bursary programme to visit the University of Liverpool and expand her knowledge of AKU research: I am a PhD...
Nitisinone programme for international patients

Nitisinone programme for international patients

Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...
13th International Scientific Conference on AKU

13th International Scientific Conference on AKU

  On the 27-28th July we hosted our 13th International Scientific Conference on AKU in Bratislava, Slovakia, which had a focus on treating hypertyrosinaemia in AKU and HT-1. This latest conference was our largest to date, with over 100 attendees from 19 countries...
13th International Scientific Conference on AKU Agenda

13th International Scientific Conference on AKU Agenda

We are looking forward to welcoming the AKU scientific community to Bratislava, Slovakia, next month for our 13th international scientific conference on AKU. On the 27-28th of July we will unite AKU researchers, academics, and clinicians from around the world at...
13th International Scientific Conference on AKU Agenda

13th International Scientific Conference on AKU

We are pleased to announce that we are hosting our 13th international conference on AKU, which will be held from the 27-28th of July. It will be held at the Faculty of Medicine, Comenius University, in Bratislava, Slovakia. The focus of the conference will be on...
This is rare!

This is rare!

This week’s blog is written by our trustee and AKU patient, Tony Esmond, who recently took part in Sanofi‘s This is Rare Campaign. To mark Rare Disease Day, Sanofi launched their This is Rare Campaign which united rare disease patients, patient group representatives,...