Through The Looking Glass- An AKU Story
This week's blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in [...]
BBC Radio 4 Success
We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including [...]
The National Alkaptonuria Centre (NAC) & COVID-19
Today's blog is written by Lesley Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for [...]
BBC Radio 4 Appeal
We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broad [...]
At Home in Lockdown: Tips From A Psychotherapist
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the [...]
Online Mini Patient Workshop
We are delighted to announce that we will be hosting a mini online patient workshop for UK patients on February 11th. The Covid-19 pandemic has force [...]
2020 Christmas Appeal News
The AKU Society team and trustees hope you had a very Merry Christmas and wish you a safe and Happy New Year. In this week’s blog we look at our rece [...]
COVID-19 January 2021 Update – The AKU Society and The NAC
The AKU Society As you are all aware, Covid-19 has changed the way a lot of services and organisations work. To ensure the safety of all staff, thei [...]
Virtual Garrod Day Coffee Morning – On The Day
Last Wednesday was our annual Garrod Day Coffee Morning. Each year on 25th November we celebrate the birthday of Sir Archibald Garrod, who first iden [...]
A Message From Nick
In today's blog is another opportunity to hear directly from the CEO and Chair of the AKU Society, Nick Sireau about a successful but challenging yea [...]