by AKU | Jan 15, 2021 | AKU Blog
The AKU Society team and trustees hope you had a very Merry Christmas and wish you a safe and Happy New Year. In this week’s blog we look at our recent Christmas appeal and found out how it went. Our recent Christmas appeal was dedicated to raising money for our newly...
by AKU | Dec 3, 2020 | AKU Blog
Last Wednesday was our annual Garrod Day Coffee Morning. Each year on 25th November we celebrate the birthday of Sir Archibald Garrod, who first identified AKU in 1902. However, this year was a little different. We usually host face-to-face coffee mornings across the...
by AKU | Sep 23, 2020 | Uncategorized
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinion on the extension of the use of nitisinone to treat AKU. This means the EMA feels that nitisinone can be...
by AKU | Jul 31, 2020 | Uncategorized
We are trying to diagnose new patients in the UK by asking people with black spots on the white of their eyes to send us photos of the black spots to see if they need a test for AKU. As a lot of you are aware, the pain from AKU gets worse when patients are...
by AKU | Jul 6, 2020 | Uncategorized
Today’s blog is a little different. Below is a video from the CEO and Chair of the AKU Society Nick Sireau, talking about how you can help us form lasting corporate partnerships that can help us raise money to continue our groundbreaking research and patient...
