by AKU | Apr 3, 2019 | Uncategorized
As many of you will know, we are running the DevelopAKUre clinical trials. These should give us evidence whether nitisinone is effective as a treatment for AKU. This weeks blog explains the third part of our clinical trial, SOFIA. DevelopAKUre is made...
by AKU | Apr 3, 2019 | Uncategorized
Last week the AKU team attended a workshop run by Findacure called ‘Navigating the Highly Specialised Technology Programme’ to improve access to rare disease treatments. This week’s blog talks about the many important messages that were taken from the day. The...
by AKU | Feb 15, 2019 | Uncategorized
The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena. We were not, however, there to view the incredible renaissance architecture or sample the lovely Tuscan wine, although we did try. Instead, we attended the final project...
by AKU | Oct 25, 2018 | Uncategorized
The AKU Society has had a hectic month. In today’s blog, we hear about what each team member has been up to.Our Fundraising Officer, Juliet, and Patient Support Manager, Hannah, were both in Glasgow for the Findacure Showcase on the 10th October. It was at...
by AKU | Sep 19, 2018 | Uncategorized
Preparations are underway for Stand up for AKU! – our charity comedy night, coming up on 3rd October at 7.30pm. It’s in Cambridge’s Portland Arms, a great venue for live comedy. Five professional comedians (Pam Ford, Rob Coleman, Jason Stampe, Jenny B...
