Global AKU patient registry

Global AKU patient registry

  We are excited to announce the launch of our global AKU patient registry. Our registry will play a crucial role in increasing our understanding of AKU and driving research into potential treatments and cures. Over the past year, we have been working with...
Liesbeth’s research visit to the University of Liverpool

Liesbeth’s research visit to the University of Liverpool

Our latest blog is written by Liesbeth Desmet, a PhD student at the Vrije Universiteit Brussel (VUB). She recently participated in our early-stage researcher bursary programme to visit the University of Liverpool and expand her knowledge of AKU research: I am a PhD...
Nitisinone programme for international patients

Nitisinone programme for international patients

Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...
13th International Scientific Conference on AKU

13th International Scientific Conference on AKU

  On the 27-28th July we hosted our 13th International Scientific Conference on AKU in Bratislava, Slovakia, which had a focus on treating hypertyrosinaemia in AKU and HT-1. This latest conference was our largest to date, with over 100 attendees from 19 countries...
13th International Scientific Conference on AKU Agenda

13th International Scientific Conference on AKU Agenda

We are looking forward to welcoming the AKU scientific community to Bratislava, Slovakia, next month for our 13th international scientific conference on AKU. On the 27-28th of July we will unite AKU researchers, academics, and clinicians from around the world at...