by AKU | Apr 3, 2019 | Uncategorized
Last week I attended the FSI skills conference that gave various training sessions specifically designed for small charities. This week’s blog talks about the tips and lessons taken from the day. FSI is a charity that provide a range of skills and training...
by AKU | Apr 3, 2019 | Uncategorized
As many of you will know, we are running the DevelopAKUre clinical trials. These should give us evidence whether nitisinone is effective as a treatment for AKU. This weeks blog explains the third part of our clinical trial, SOFIA. DevelopAKUre is made...
by AKU | Apr 3, 2019 | Uncategorized
Last week the AKU team attended a workshop run by Findacure called ‘Navigating the Highly Specialised Technology Programme’ to improve access to rare disease treatments. This week’s blog talks about the many important messages that were taken from the day. The...
by AKU | Sep 19, 2018 | Uncategorized
Preparations are underway for Stand up for AKU! – our charity comedy night, coming up on 3rd October at 7.30pm. It’s in Cambridge’s Portland Arms, a great venue for live comedy. Five professional comedians (Pam Ford, Rob Coleman, Jason Stampe, Jenny B...
by AKU | Sep 12, 2018 | Uncategorized
10th-16th September is Remember a Charity Week. Legacy giving – the gifts which people leave in their wills – are an important source of funding for UK charities. It makes up 6% of the charity sector’s total income. Charities of all sizes rely...
