About Us

by | Jul 18, 2023

About Us Patient Support Living with AKU can be challenging, with loss of mobility and pain affecting patients’ physical and mental health. This is why it is so important for us to provide support to our patients and their families, helping them come to terms with the...

Home

by | Jul 13, 2023

Alkaptonuria Society  Alkaptonuria is a rare inherited disorder WHAT IS AKU? About Us AKU Blog ALKAPTONURIA EXPLAINED Alkaptonuria, also known as AKU or Black Bone Disease, is an extremely rare genetic condition, which can cause significant damage to the bones,...
NAC 10th Anniversary Celebration

NAC 10th Anniversary Celebration

by | May 4, 2022 | AKU Blog

In June this year, we are celebrating the 10th anniversary of the National Alkaptonuria Centre (NAC), which has played a pivotal role in supporting and caring for the AKU community. In 2012, the AKU Society collaborated with the Department of Health to establish...
BBC Radio 4 Appeal

BBC Radio 4 Appeal

by | Apr 16, 2021 | AKU Blog

We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broadcast their message and calls for support to a large national audience. What is a BBC Radio 4 charity appeal? Since the...