by AKU | Nov 8, 2021 | AKU Blog
Today’s blog is written by one of our hardworking volunteers for our exciting upcoming crowdfunding campaign to raise money for the first Global Black Bone Disease registry My name is Denise Higgins and I am an AKU patient and president of The AKU Society of North...
by AKU | Sep 14, 2021 | AKU Blog
This week’s blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in September for the first time. Together Mike and Lindsay run a successful racing team called Close racing. When they...
by AKU | Jul 16, 2021 | AKU Blog
We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including Giftaid, we have raised a staggering £28,188.10. We want to say a huge thank you to every single person who donated to...
by AKU | Jul 1, 2021 | AKU Blog
Today’s blog is written by Lesley Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for everyone, and the AKU community is no exception. When we held our clinics at the NAC in March 2020, we had no idea how...
by AKU | May 21, 2021 | Uncategorized
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkably interesting account of her father Fred and his experiences with the disease before we had established the National...
