by AKU | Apr 25, 2019 | Uncategorized
Our annual ‘Stand Up to AKU’ night is rapidly approaching and here at the AKU Society, we are all very excited. On Sunday 9th June, we have four fantastic comedy acts performing at the Hot Water Comedy Club in the centre of Liverpool. The fabulous Pam Ford is hosting...
by AKU | Apr 18, 2019 | Uncategorized
Today’s blog is written by AKU patient Simon Laxon. In it, he writes about his experience with the disease and how the National Alkaptonuria Centre (NAC) has helped him.Having a rare genetic disorder can be a pretty daunting thing. It can leave a person prone to...
by AKU | Apr 12, 2019 | Uncategorized
We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are heading back to Liverpool’s legendary Hot Water Comedy Club, where we hosted 2017’s barnstorming night. Pam Ford is back at the wheel and is sure to keep the...
by AKU | Apr 5, 2019 | Uncategorized
On Tuesday the 26th of March, our Patient Support Manager, Hannah, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start and Public Health Luton worked in...
by AKU | Apr 3, 2019 | Uncategorized
This week we meet Eve Whitley, our new Admin Assistant. Eve started just this week, and will be helping Hannah and the rest of the team to support all of our patients. This is your chance to get to know her a bit better. What were you doing before you joined...
