The National Alkaptonuria Centre (NAC) & COVID-19

The National Alkaptonuria Centre (NAC) & COVID-19

Today’s blog is written by Hannah Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for everyone, and the AKU community is no exception. When we held our clinics at the NAC in March 2020, we had no idea how...
BBC 4 Radio Appeal – Jess Tells Her Story

BBC 4 Radio Appeal – Jess Tells Her Story

This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear more about the appeal, and how and when to donate please head here. You can also listen to an audio clip of Jess...
BBC Radio 4 Appeal

BBC Radio 4 Appeal

We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broadcast their message and calls for support to a large national audience. What is a BBC Radio 4 charity appeal? Since the...
2021 Online Mini Workshop – Round Up

2021 Online Mini Workshop – Round Up

In today’s blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-face meetings that have not been able to go ahead due to COVID-19 and lockdowns in the UK. Held on Thursday 11th February,...