by AKU | Aug 8, 2017 | Uncategorized
On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they...
by AKU | Jul 25, 2017 | Uncategorized
In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures new. They will both be sorely missed by both patients and colleagues alike. Rory I started working for the AKU Society in September last year. The entire experience has...
by AKU | Jul 19, 2017 | Uncategorized
In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell us about his experience with AKU, sharing his patient story with us he talks us through his initial diagnosis to how AKU affects him today. I was first diagnosed with AKU at...
by AKU | Jul 11, 2017 | Uncategorized
Oliver has worked at the AKU Society for the last 7 years, and has been CEO for the last 2. At the end of this week, he’ll be leaving to move into a new role at Roche but will still be helping rare disease patients to access new treatments. In today’s blog, Oliver...
by AKU | Jul 5, 2017 | Uncategorized
On Thursday, June 29th, Robin and Hannah travelled up to Liverpool for the 2017 Stand Up For AKU Comedy Night. Held at the Hot Water Comedy Club in Liverpool, the event had some of the local Liverpool circuits top comics billed to perform, with an exciting headline...
