The 11th Scientific workshop on AKU – Siena 2019

The 11th Scientific workshop on AKU – Siena 2019

The AKU Society has just come back from a hectic week in the beautiful Italian city of Siena. We were not, however, there to view the incredible renaissance architecture or sample the lovely Tuscan wine, although we did try. Instead, we attended the final project...
SONIA 2 – Last patients

SONIA 2 – Last patients

On the 18th January, the last SONIA 2 (Suitability of Nitisinone In Alkaptonuria 2) patients were seen at the Royal Liverpool and Broadgreen University Hospital. This means that the patient element of the SONIA 2 clinical trial is now officially over.Patients from all...
Looking forward to 2019

Looking forward to 2019

Now we are all settled in after Christmas and the New Year, here at the AKU Society we would like to take the opportunity to look at all our plans for 2019. From trips aboard to new research, it seems like 2019 will be as busy as ever.At the end of the month, the...
2018 In Review

2018 In Review

A Happy New Year from Everyone at the AKU Society. Now that 2018 is well and truly behind us, we would like to take the opportunity to look back at another successful year for the AKU Society. Our 2nd International Patient Workshop In April we hosted our second...
DevelopAKUre SONIA 2 – Update

DevelopAKUre SONIA 2 – Update

We are happy to announce that two of our three SONIA 2 trial sites have now finished seeing patients. Both Hôpital Necker – Enfants Malades in Paris and The National Institute of Rheumatic Disease, Piešťany, Slovakia, have now completed seeing AKU...