by AKU | May 4, 2022 | AKU Blog
In June this year, we are celebrating the 10th anniversary of the National Alkaptonuria Centre (NAC), which has played a pivotal role in supporting and caring for the AKU community. In 2012, the AKU Society collaborated with the Department of Health to establish...
by AKU | Apr 16, 2021 | AKU Blog
We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broadcast their message and calls for support to a large national audience. What is a BBC Radio 4 charity appeal? Since the...
by AKU | Oct 1, 2020 | Uncategorized
Good news! The AKU Society has been awarded a £45,000 grant from the National Lottery Coronavirus Community Support Fund. This emergency COVID-19 fund will support us for the next six months to support patients mental health. We have completed two...
by AKU | Sep 23, 2020 | Uncategorized
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinion on the extension of the use of nitisinone to treat AKU. This means the EMA feels that nitisinone can be...
by AKU | Feb 14, 2020 | Uncategorized
In this week’s blog, we would like to introduce our 2020 Cambridge Half Marathon Runners! The Half Marathon will be on the 8th March starting on Midsummer Common before winding its way through the historic Cambridge centre. We have three runners braving the 13-mile...
