by AKU | Apr 5, 2019 | Uncategorized
On Tuesday the 26th of March, our Patient Support Manager, Hannah, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start and Public Health Luton worked in...
by AKU | Apr 3, 2019 | Uncategorized
Last week, Rare Disease UK launched a report of its recent patient survey, looking at exploring what it is like to live with a rare disease. This week’s blog discusses the many findings that were published in the report. Their report: “The Rare Reality...
by AKU | Apr 3, 2019 | Uncategorized
This week we meet Eve Whitley, our new Admin Assistant. Eve started just this week, and will be helping Hannah and the rest of the team to support all of our patients. This is your chance to get to know her a bit better. What were you doing before you joined...
by AKU | Apr 3, 2019 | Uncategorized
Last week I attended the FSI skills conference that gave various training sessions specifically designed for small charities. This week’s blog talks about the tips and lessons taken from the day. FSI is a charity that provide a range of skills and training...
by AKU | Apr 3, 2019 | Uncategorized
As many of you will know, we are running the DevelopAKUre clinical trials. These should give us evidence whether nitisinone is effective as a treatment for AKU. This weeks blog explains the third part of our clinical trial, SOFIA. DevelopAKUre is made...
