by AKU | Apr 3, 2019 | Uncategorized
This week we meet Eve Whitley, our new Admin Assistant. Eve started just this week, and will be helping Hannah and the rest of the team to support all of our patients. This is your chance to get to know her a bit better. What were you doing before you joined...
by AKU | Apr 3, 2019 | Uncategorized
Last week I attended the FSI skills conference that gave various training sessions specifically designed for small charities. This week’s blog talks about the tips and lessons taken from the day. FSI is a charity that provide a range of skills and training...
by AKU | Apr 3, 2019 | Uncategorized
As many of you will know, we are running the DevelopAKUre clinical trials. These should give us evidence whether nitisinone is effective as a treatment for AKU. This weeks blog explains the third part of our clinical trial, SOFIA. DevelopAKUre is made...
by AKU | Apr 3, 2019 | Uncategorized
Last week the AKU team attended a workshop run by Findacure called ‘Navigating the Highly Specialised Technology Programme’ to improve access to rare disease treatments. This week’s blog talks about the many important messages that were taken from the day. The...
by AKU | Mar 14, 2019 | Uncategorized
Rare Disease Day is an international day designed to raise awareness to the public and those in government about rare conditions and how they affect people across the world. The day falls on the last day of February every year and sees thousands of events...
