by AKU | May 3, 2019 | Uncategorized
Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people on Facebook every month, Facebook can be a brilliant place for you to engage with your friends and family and ask them to donate to your AKU fundraiser. In today’s blog,...
by AKU | Apr 25, 2019 | Uncategorized
Our annual ‘Stand Up to AKU’ night is rapidly approaching and here at the AKU Society, we are all very excited. On Sunday 9th June, we have four fantastic comedy acts performing at the Hot Water Comedy Club in the centre of Liverpool. The fabulous Pam Ford is hosting...
by AKU | Apr 18, 2019 | Uncategorized
Today’s blog is written by AKU patient Simon Laxon. In it, he writes about his experience with the disease and how the National Alkaptonuria Centre (NAC) has helped him.Having a rare genetic disorder can be a pretty daunting thing. It can leave a person prone to...
by AKU | Apr 12, 2019 | Uncategorized
We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are heading back to Liverpool’s legendary Hot Water Comedy Club, where we hosted 2017’s barnstorming night. Pam Ford is back at the wheel and is sure to keep the...
by AKU | Apr 5, 2019 | Uncategorized
On Tuesday the 26th of March, our Patient Support Manager, Lesley, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start and Public Health Luton worked in...
by AKU | Apr 3, 2019 | Uncategorized
Last week, Rare Disease UK launched a report of its recent patient survey, looking at exploring what it is like to live with a rare disease. This week’s blog discusses the many findings that were published in the report. Their report: “The Rare Reality...
