by AKU | Jan 22, 2021 | Uncategorized
This week’s blog is written by Professor Joery De Kock and explains his exciting research into a cure for AKU. At the end of this blog, we have included a short paragraph that explains the research in a short and accessible way. It was early 2015 when I became...
by AKU | Dec 11, 2020 | Uncategorized
It’s now more than a week since our Christmas appeal launched. Thank you to the people who have donated already. Your donations will help us fund our vital counselling service available for free for all AKU patients in the UK. One of the ways we have reached our...
by AKU | Oct 27, 2020 | Uncategorized
The AKU Society’s new Telephone and Online Counselling Service is now up and running! This is a free, confidential service for all UK AKU patients and family members. This service is part of our Body to Mind Project which received Funding from the Coronavirus...
by AKU | Oct 7, 2020 | Uncategorized
Our annual Garrod Day Coffee Morning is approaching again! However, this year we are taking a slightly different approach with Garrod Day as we are going virtual! Yes, on 25th November we are hosting a virtual Garrod Day Coffee Morning. What is Garrod Day? Garrod Day...
by AKU | Oct 1, 2020 | Uncategorized
Good news! The AKU Society has been awarded a £45,000 grant from the National Lottery Coronavirus Community Support Fund. This emergency COVID-19 fund will support us for the next six months to support patients mental health. We have completed two...
by AKU | Sep 23, 2020 | Uncategorized
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinion on the extension of the use of nitisinone to treat AKU. This means the EMA feels that nitisinone can be...
