Meet Marina – AKU Society Student Placement

Meet Marina – AKU Society Student Placement

This weeks blog is written by our placement student, Marina, from Royal Holloway University London. Hello, I’m Marina and I am going into my third year in Biomedical Sciences at Royal Holloway University of London. I am originally from Barcelona, Spain, and...
Black Spots On The White of the Eyes.

Black Spots On The White of the Eyes.

We are trying to diagnose new patients in the UK by asking people with black spots on the white of their eyes to send us photos of the black spots to see if they need a test for AKU. As a lot of you are aware, the pain from AKU gets worse when patients are...

Corporate Partnerships – A Video Appeal

Today’s blog is a little different. Below is a video from the CEO and Chair of the AKU Society Nick Sireau, talking about how you can help us form lasting corporate partnerships that can help us raise money to continue our groundbreaking research and patient...
Dr Andrew Davidson, PhD

Dr Andrew Davidson, PhD

Todays blog is written by Dr Andrew Davidson who has recently completed his PhD in AKU and nitisinone. I became a state registered Clinical Scientist in Clinical Biochemistry back in 2008 and following this, like all professionals in the speciality I studied for my...
Virtual Coffee & a Chat

Virtual Coffee & a Chat

We are excited to announce we are hosting our first virtual ‘Coffee & Chat’ event! What is a ‘Coffee & Chat’? This is where you take a break from your day and join in on our video chat to chat and catch up with the AKU community. Feel free to invite...
ECRD 2020

ECRD 2020

Last week the AKU Society team attended the 10th European Conference on Rare Diseases 2020 (ECRD 2020), hosted by Eurordis – a charity that represents rare disease patients across Europe. Every two years the ECRD is held in a European country and...