by AKU | Nov 3, 2017 | Uncategorized
On 18th and 19th October, Hannah, our Patient Support Manager, and Carol, one of our AKU patients, went to the Birmingham NEC to run a stand at Best Practice 2017. In this week’s blog, we find out how they got on. Best Practice – a conference, exhibition and...
by AKU | Oct 25, 2017 | Uncategorized
Last Month the National Alkaptonuria Centres’ new data controller, Leanne joined the NAC team. Her role will be assisting Hollie with the running of the centre and making sure all information is entered clearly and accurately. In this week’s blog, Leanne tells us a...
by AKU | Oct 12, 2017 | Uncategorized
So, me (Hannah from the gait lab) and my friend Steven have decided to take on the challenge of climbing to Everest Base Camp on November 14th. Of course, the charity of our choice is the AKU Society. The trek will take 15 days in total and will take us to the highest...
by AKU | Aug 8, 2017 | Uncategorized
On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they...
by AKU | Jul 25, 2017 | Uncategorized
In today’s blog, we hear from Rory and Robin who are both leaving the AKU Society for pastures new. They will both be sorely missed by both patients and colleagues alike. Rory I started working for the AKU Society in September last year. The entire experience has...
by AKU | Jul 19, 2017 | Uncategorized
In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell us about his experience with AKU, sharing his patient story with us he talks us through his initial diagnosis to how AKU affects him today. I was first diagnosed with AKU at...
