by AKU | Sep 12, 2018 | Uncategorized
10th-16th September is Remember a Charity Week. Legacy giving – the gifts which people leave in their wills – are an important source of funding for UK charities. It makes up 6% of the charity sector’s total income. Charities of all sizes rely...
by AKU | Sep 5, 2018 | Uncategorized
In this week’s blog, we meet Juliet, our new Fundraising Officer. Juliet will be involved in apply for funds from trusts and foundations along with organising exciting community events. All to support the vital work the charity does to help patients with AKU. What...
by AKU | Aug 29, 2018 | Uncategorized
In 2012, AKU Society CEO Nick Sireau and others founded a charity called Findacure. Findacure helps rare disease patient groups get off the ground. The hope is that all can enjoy the same success as the AKU Society. We covered them on our blog on 11th April – check it...
by AKU | Aug 22, 2018 | Uncategorized
This summer, we are looking to update our AKU recipe booklet. We invite patients to send in their favourite recipes, which we will adapt and add to our collection. If you have any ideas, email Hannah at [email protected]. The National Alkaptonuria Centre (NAC) in...
by AKU | Aug 15, 2018 | Uncategorized
The newly published results of a study held at the National Alkaptonuria Centre (NAC) show that a drug called nitisinone improves the health of AKU patients. They also show that it reverses a process called ochronosis, where a black pigment is deposited in tissue as a...
by AKU | Aug 8, 2018 | Uncategorized
We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms, Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the...
