BBC Radio 4 Success

BBC Radio 4 Success

We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including Giftaid, we have raised a staggering £28,188.10. We want to say a huge thank you to every single person who donated to...
The National Alkaptonuria Centre (NAC) & COVID-19

The National Alkaptonuria Centre (NAC) & COVID-19

Today’s blog is written by Lesley Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for everyone, and the AKU community is no exception. When we held our clinics at the NAC in March 2020, we had no idea how...
BBC Radio 4 Appeal

BBC Radio 4 Appeal

We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broadcast their message and calls for support to a large national audience. What is a BBC Radio 4 charity appeal? Since the...
At Home in Lockdown: Tips From A Psychotherapist

At Home in Lockdown: Tips From A Psychotherapist

Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the same storm, but not all in the same boat.’ Some of you will be craving space in a house that feels too...
Online Mini Patient Workshop

Online Mini Patient Workshop

We are delighted to announce that we will be hosting a mini online patient workshop for UK patients on February 11th. The Covid-19 pandemic has forced us to cancel our popular face to face patient workshops usually held in Liverpool every year. Due to this, we are...
2020 Christmas Appeal News

2020 Christmas Appeal News

The AKU Society team and trustees hope you had a very Merry Christmas and wish you a safe and Happy New Year. In this week’s blog we look at our recent Christmas appeal and found out how it went. Our recent Christmas appeal was dedicated to raising money for our newly...