by AKU | May 4, 2022 | AKU Blog
In June this year, we are celebrating the 10th anniversary of the National Alkaptonuria Centre (NAC), which has played a pivotal role in supporting and caring for the AKU community. In 2012, the AKU Society collaborated with the Department of Health to establish...
by AKU | Apr 22, 2022 | AKU Blog
We are looking forward to welcoming the AKU Scientific community to Brussels next month for our 12th International Scientific Conference on AKU. This meeting will bring together AKU researchers, academics, and clinicians to update the wider AKU community on AKU...
by AKU | Feb 14, 2022 | AKU Blog
We are delighted to announce the return of our cancelled AKU Scientific Conference. The conference was planned for last year but was delayed due to the uncertainty of country-to-country restrictions as part of the COVID-19 pandemic. The meeting will again be held in...
by AKU | Jan 7, 2022 | AKU Blog
In this week’s blog, we say goodbye to our Head of Fundraising, Juliet Rowe, who started her role in September 2018 – what a whirlwind it’s been! What are you most proud of achieving during your time here? Our BBC Radio 4 Appeal was an exciting and moving experience...
by AKU | Nov 8, 2021 | AKU Blog
Today’s blog is written by one of our hardworking volunteers for our exciting upcoming crowdfunding campaign to raise money for the first Global Black Bone Disease registry My name is Denise Higgins and I am an AKU patient and president of The AKU Society of North...
by AKU | Sep 14, 2021 | AKU Blog
This week’s blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in September for the first time. Together Mike and Lindsay run a successful racing team called Close racing. When they...
