Meet Denise Higgins – President of the AKU Society North America
Today's blog is written by one of our hardworking volunteers for our exciting upcoming crowdfunding campaign to raise money for the first Global Blac [...]
Through The Looking Glass- An AKU Story
This week's blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in [...]
BBC Radio 4 Success
We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including [...]
The National Alkaptonuria Centre (NAC) & COVID-19
Today's blog is written by Lesley Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for [...]
BBC Radio 4 Appeal
We are delighted to announce that we have been selected by BBC Radio 4 to produce a charity appeal. The appeals are ways in which charities can broad [...]
At Home in Lockdown: Tips From A Psychotherapist
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the [...]
Online Mini Patient Workshop
We are delighted to announce that we will be hosting a mini online patient workshop for UK patients on February 11th. The Covid-19 pandemic has force [...]
2020 Christmas Appeal News
The AKU Society team and trustees hope you had a very Merry Christmas and wish you a safe and Happy New Year. In this week’s blog we look at our rece [...]
COVID-19 January 2021 Update – The AKU Society and The NAC
The AKU Society As you are all aware, Covid-19 has changed the way a lot of services and organisations work. To ensure the safety of all staff, thei [...]
Virtual Garrod Day Coffee Morning – On The Day
Last Wednesday was our annual Garrod Day Coffee Morning. Each year on 25th November we celebrate the birthday of Sir Archibald Garrod, who first iden [...]