No Two Stories Alike: Living with AKU Pain

No Two Stories Alike: Living with AKU Pain

Not all pain can be seen, yet its effects can reach into every part of life. It may mean cancelling plans, stepping back from hobbies, or even stepping back from work – all changes that people don’t always associate with pain. And alongside these practical...
Join Us for Coffee & more This Pain Awareness Month

Join Us for Coffee & more This Pain Awareness Month

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Chris’s Story: Bringing AKU Awareness to the Football Pitch

Chris’s Story: Bringing AKU Awareness to the Football Pitch

Raising awareness of Alkaptonuria (AKU) is at the heart of what we do at the AKU Society. As a rare condition, AKU is often misunderstood or overlooked. This lack of awareness can delay diagnosis, limit support, and leave patients feeling isolated. That is why patient...
New PhD Launch, FDA Milestone, & Pain Awareness Ahead

New PhD Launch, FDA Milestone, & Pain Awareness Ahead

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Beyond the Biology: The Emotional Landscape of AKU

Beyond the Biology: The Emotional Landscape of AKU

Alkaptonuria (AKU) is a rare genetic condition that affects 1 in 250,000 to 500,000 people globally. Caused by a missing enzyme that breaks down a substance called homogentisic acid (HGA), AKU leads to the darkening of bones and cartilage, and can cause joint damage,...