AKU Society Christmas Appeal 2020
It's now more than a week since our Christmas appeal launched. Thank you to the people who have donated already. Your donations will help us fund our [...]
Virtual Garrod Day Coffee Morning – On The Day
Last Wednesday was our annual Garrod Day Coffee Morning. Each year on 25th November we celebrate the birthday of Sir Archibald Garrod, who first iden [...]
Free Virtual Counselling For UK AKU Patients
The AKU Society’s new Telephone and Online Counselling Service is now up and running! This is a free, confidential service for all UK AKU patients an [...]
A Message From Nick
In today's blog is another opportunity to hear directly from the CEO and Chair of the AKU Society, Nick Sireau about a successful but challenging yea [...]
Garrod Day Coffee Morning 2020 (Virtual Edition)
Our annual Garrod Day Coffee Morning is approaching again! However, this year we are taking a slightly different approach with Garrod Day as we are g [...]
‘Body to Mind Project’ National Lottery Community Fund
Good news! The AKU Society has been awarded a £45,000 grant from the National Lottery Coronavirus Community Support Fund. This emergency COVID-19 fun [...]
The EMA’s Decision and Nitisinone
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinio [...]
Meet Marina – AKU Society Student Placement
This weeks blog is written by our placement student, Marina, from Royal Holloway University London. Hello, I’m Marina and I am going into my third ye [...]
Black Spots On The White of the Eyes.
We are trying to diagnose new patients in the UK by asking people with black spots on the white of their eyes to send us photos of the black spots to [...]
Corporate Partnerships – A Video Appeal
Today's blog is a little different. Below is a video from the CEO and Chair of the AKU Society Nick Sireau, talking about how you can help us form la [...]