by AKU | Jun 29, 2016 | Uncategorized
The National AKU Centre (NAC) opened its doors to the first AKU patients back in June 2012. It is now 4 years on and the NAC continues to grow and develop. Our Patient Support Manager, Hannah has been there from the very beginning and remains an integral part of the...
by AKU | Jun 22, 2016 | Uncategorized
June this year is a very special month at the National AKU Centre (NAC) as AKU patients Sharon and Maureen will be attending for their 5th visit. The NAC opened its doors 5 years ago and welcomed Sharon and Maureen as their very first patients. To mark this very...
by AKU | Jun 15, 2016 | Uncategorized
Last week our first ever AKU comedy night took place in Cambridge. This week’s blog talks about the big night and how such events are helping us to expand our community fundraising. Last Thursday, the AKU team were busy preparing for our first ever charity comedy...
by AKU | Jun 8, 2016 | Uncategorized
In this week’s blog, Oliver talks about attending the 8th European Conference on Rare Diseases and Orphan Products (ECRD) In Edinburgh. Where he was asked to present DevelopAKUre as a game changer in drug development, authorisation and access. Oliver also explains...
by AKU | Jun 1, 2016 | Uncategorized
In the rare disease world, communication is king. Patients must communicate with those around them in order to get support, much needed help and to raise the profile of their disease. For rare disease patient groups, effective communication is just as...
