by AKU | Aug 15, 2018 | Uncategorized
The newly published results of a study held at the National Alkaptonuria Centre (NAC) show that a drug called nitisinone improves the health of AKU patients. They also show that it reverses a process called ochronosis, where a black pigment is deposited in tissue as a...
by AKU | Aug 8, 2018 | Uncategorized
We’re really excited about our third Stand Up for AKU Comedy Night on 3rd October. This year, we return to the Portland Arms, Cambridge, for a night of top-class entertainment. The event starts at 7.30pm. Tickets are £11 or £15 on the...
by AKU | Jul 31, 2018 | Uncategorized
New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (NAC), which gives nitisinone to English and Scottish AKU patients, was running an observational study to...
by AKU | Jul 25, 2018 | Uncategorized
We have some exciting news. The AKU Society has just been awarded a £60,000 grant from the Childwick Trust. This will fund a research study into children with AKU, called SOFIA-Paediatric (‘Subchondral Ochronotic Features in Alkaptonuria in the...
by AKU | Jul 18, 2018 | Uncategorized
We are looking for a Fundraising Officer. The vacancy is up online and we encourage people to apply. The successful candidate will be the third Fundraising Officer in our history. Our first was Lydia Powell. Lydia joined the AKU Society after taking a...
