by AKU | Nov 15, 2017 | Uncategorized
Here at the AKU Society we are very lucky to have so many talented and dedicated people working in association with us.Hannah Shepherd, of Liverpool John Moores University, has been the gait analyst for the National Alkaptonuria Centre since 2015. The NAC...
by AKU | Nov 3, 2017 | Uncategorized
On 18th and 19th October, Hannah, our Patient Support Manager, and Carol, one of our AKU patients, went to the Birmingham NEC to run a stand at Best Practice 2017. In this week’s blog, we find out how they got on. Best Practice – a conference, exhibition and...
by AKU | Aug 8, 2017 | Uncategorized
On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they...
by AKU | May 31, 2017 | Uncategorized
On the 19th- 20th May, Oliver and Ciarán travelled to Budapest to represent the AKU Society at the Eurordis – Rare Diseases Europe, membership meeting. The annual event brings together patient groups from all over Europe for its annual general meeting and a day of...
by AKU | Jan 24, 2017 | Uncategorized
March 5th is the date of the Cambridge Half Marathon. We have 9 runners taking part and in this week’s blog, we will introduce you to some of them. They are all raising vital funds for The AKU Society, so please follow their links and donate. Rory Munro, 29,...
