The National Alkaptonuria Centre (NAC) & COVID-19

The National Alkaptonuria Centre (NAC) & COVID-19

Today’s blog is written by Hannah Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for everyone, and the AKU community is no exception. When we held our clinics at the NAC in March 2020, we had no idea how...
2021 Online Mini Workshop – Round Up

2021 Online Mini Workshop – Round Up

In today’s blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-face meetings that have not been able to go ahead due to COVID-19 and lockdowns in the UK. Held on Thursday 11th February,...
At Home in Lockdown: Tips From A Psychotherapist

At Home in Lockdown: Tips From A Psychotherapist

Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the same storm, but not all in the same boat.’ Some of you will be craving space in a house that feels too...
2021 Online Mini Workshop – Round Up

Online Mini Patient Workshop

We are delighted to announce that we will be hosting a mini online patient workshop for UK patients on February 11th. The Covid-19 pandemic has forced us to cancel our popular face to face patient workshops usually held in Liverpool every year. Due to this, we are...
2020 Christmas Appeal News

2020 Christmas Appeal News

The AKU Society team and trustees hope you had a very Merry Christmas and wish you a safe and Happy New Year. In this week’s blog we look at our recent Christmas appeal and found out how it went. Our recent Christmas appeal was dedicated to raising money for our newly...