Global AKU patient registry

by AKU | Apr 10, 2024 | AKU Blog

  We are excited to announce the launch of our global AKU patient registry. Our registry will play a crucial role in increasing our understanding of AKU and driving research into potential treatments and cures. Over the past year, we have been working with...

Nitisinone programme for international patients

by AKU | Feb 9, 2024 | AKU Blog, Uncategorized

Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...

AKU Patient Registry FAQ

by Nick Sireau | Feb 6, 2024

AKU Patient Registry FAQ What is the AKU patient registry? The patient registry is a global online database created to monitor the progression of AKU, evaluate current treatment and management of the condition, and track the prevalence of patients across the world....

Symptoms

by AKU | Jan 17, 2024

Symptoms The primary symptom of AKU is the darkening of urine upon exposure to air. This discoloration ranges from dark brown to black. However, not all individuals with AKU experience this symptom. Over time, the build-up of homogentisic acid (HGA) causes ochronosis,...

AKU Global Patient Registry

by AKU | Oct 18, 2023

AKU Global Patient Registry If you have been diagnosed with AKU anywhere in the world, you can make an important contribution to our research into understanding, treating, and curing the condition.    Join the registry What is the AKU patient registry? Our global...