by AKU | Aug 20, 2014 | Uncategorized
Last week we held a research and science extravaganza event on PatientsLikeMe. All week we had research experts online to answer patient questions, resulting in some great discussions. In today’s blog we take a look at those discussions and share some information...
by AKU | Aug 6, 2014 | Uncategorized
Next week we will be launching the research and science expert forum on PatientsLikeMe. Before the week begins, we would like to give you a little more information on the structure of the events. We also have a few more experts to reveal! The research and science...
by AKU | Jul 30, 2014 | Uncategorized
Our SONIA 2 clinical trial is underway at all our sites across Europe. Conducting such a complex trial across three countries is not easy, but the teams at each centre have been working hard to ensure everything runs smoothly. Today we take a look at how the trial is...
by AKU | Jul 23, 2014 | Uncategorized
In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of...
by AKU | Jul 16, 2014 | Uncategorized
In November 2013 our Welsh AKU patients were allowed to visit the National Alkaptonuria Centre (NAC) for the first time. However, we have recently discovered they may not be able to come back for their follow up visits. This has got us thinking about the true value of...
