by AKU | Oct 27, 2020 | Uncategorized
The AKU Society’s new Telephone and Online Counselling Service is now up and running! This is a free, confidential service for all UK AKU patients and family members. This service is part of our Body to Mind Project which received Funding from the Coronavirus...
by AKU | Oct 16, 2020 | AKU Blog
In today’s blog is another opportunity to hear directly from the CEO and Chair of the AKU Society, Nick Sireau about a successful but challenging year. 2020 has been a big year for AKU. On the one hand, we’ve had huge successes, particularly the positive opinion...
by AKU | Oct 7, 2020 | Uncategorized
Our annual Garrod Day Coffee Morning is approaching again! However, this year we are taking a slightly different approach with Garrod Day as we are going virtual! Yes, on 25th November we are hosting a virtual Garrod Day Coffee Morning. What is Garrod Day? Garrod Day...
by AKU | Oct 1, 2020 | Uncategorized
Good news! The AKU Society has been awarded a £45,000 grant from the National Lottery Coronavirus Community Support Fund. This emergency COVID-19 fund will support us for the next six months to support patients mental health. We have completed two...
by AKU | Sep 23, 2020 | Uncategorized
The AKU Society is proud to announce that the European Medicines Agency (EMA), which regulates medications across Europe, has given a positive opinion on the extension of the use of nitisinone to treat AKU. This means the EMA feels that nitisinone can be...
