by AKU | Jul 1, 2021 | AKU Blog
Today’s blog is written by Hannah Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for everyone, and the AKU community is no exception. When we held our clinics at the NAC in March 2020, we had no idea how...
by AKU | May 21, 2021 | Uncategorized
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkably interesting account of her father Fred and his experiences with the disease before we had established the National...
by AKU | Apr 23, 2021 | Uncategorized
This week’s blog is written by Jess Barnes, Mum to a son called Daniel with AKU. Jess will be presenting our BBC appeal on Sunday 2nd of May. To hear more about the appeal, and how and when to donate please head here. You can also listen to an audio clip of Jess...
by AKU | Feb 22, 2021 | Uncategorized
In today’s blog, we look at our recent mini online patient workshop held this February. The workshop was designed to fill the gap left by face-to-face meetings that have not been able to go ahead due to COVID-19 and lockdowns in the UK. Held on Thursday 11th February,...
by AKU | Feb 5, 2021 | AKU Blog
Todays blog is written by Kym Winter, CEO of rareminds and psychotherapist. We’ve all got used to the saying during lockdown that ‘we are all in the same storm, but not all in the same boat.’ Some of you will be craving space in a house that feels too...
