What is AKU?

by AKU | Jul 19, 2023

What is AKU? Alkaptonuria, also known as AKU or Black Bone Disease, is an extremely rare genetic condition, which can cause significant damage to the bones, cartilage and tissues of those affected. AKU normally only affects one in every 250,000 people worldwide. AKU...

About Us

by AKU | Jul 18, 2023

About Us Patient Support Living with AKU can be challenging, with loss of mobility and pain affecting patients’ physical and mental health. This is why it is so important for us to provide support to our patients and their families, helping them come to terms with the...

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by AKU | Jul 13, 2023

Alkaptonuria Society  Alkaptonuria is a rare inherited disorder WHAT IS AKU? About Us AKU Blog ALKAPTONURIA EXPLAINED Alkaptonuria, also known as AKU or Black Bone Disease, is an extremely rare genetic condition, which can cause significant damage to the bones,...

13th International Scientific Conference on AKU

by AKU | Jul 9, 2023 | AKU Blog, Uncategorized

  On the 27-28th July we hosted our 13th International Scientific Conference on AKU in Bratislava, Slovakia, which had a focus on treating hypertyrosinaemia in AKU and HT-1. This latest conference was our largest to date, with over 100 attendees from 19 countries...

13th International Scientific Conference on AKU Agenda

by AKU | Jun 13, 2023 | AKU Blog

We are looking forward to welcoming the AKU scientific community to Bratislava, Slovakia, next month for our 13th international scientific conference on AKU. On the 27-28th of July we will unite AKU researchers, academics, and clinicians from around the world at...