by AKU | Dec 16, 2019 | Uncategorized
Today’s blog is written by the head of the Brazilian AKU Society, Flavia Mayrink. Originally written in Portuguese, the blog details her recent visit to the National Institutes of Health (NIH) which is based in Bethesda, Maryland, USA.In September...
by AKU | Nov 8, 2019 | Uncategorized
Eurordis Digital School At the start of the month Ciarán our Communications Manager travelled to chilly Gothenburg in Sweden to take part in the inaugural Eurordis Digital School. The workshop was held at the Agrenska Resource Centre for Rare Diseases, a facility...
by AKU | Aug 2, 2019 | Uncategorized
Today’s blog is written by Nick Sireau the Chair and CEO of the AKU Society, It was in 2003 that I sat down with Robert Gregory, Prof Alan Shenkin and Prof Ranganath in an office at the Royal Liverpool University Hospital and discussed where we wanted to go with the...
by AKU | Apr 12, 2019 | Uncategorized
We are excited to announce that our Stand up to AKU Comedy Night is back! This year we are heading back to Liverpool’s legendary Hot Water Comedy Club, where we hosted 2017’s barnstorming night. Pam Ford is back at the wheel and is sure to keep the...
by AKU | Nov 1, 2018 | Uncategorized
Garrod Day is quickly approaching. It’s a very important day in the history of alkaptonuria (AKU). In this week’s blog we celebrate all of Sir Archibald Garrod’s fantastic achievements and discuss how you can make an impact by hosting your own coffee morning for...
