by AKU | Nov 8, 2021 | AKU Blog
Today’s blog is written by one of our hardworking volunteers for our exciting upcoming crowdfunding campaign to raise money for the first Global Black Bone Disease registry My name is Denise Higgins and I am an AKU patient and president of The AKU Society of North...
by AKU | Mar 13, 2020 | Uncategorized
On Sunday 8th March, our Fundraising Officer Juliet and CEO Nick were at Midsummers Common in the centre of Cambridge to cheer on our half marathon runners Juliette and Rob. They braved the 13-mile Saucony Cambridge Half Marathon around...
by AKU | Feb 14, 2020 | Uncategorized
In this week’s blog, we would like to introduce our 2020 Cambridge Half Marathon Runners! The Half Marathon will be on the 8th March starting on Midsummer Common before winding its way through the historic Cambridge centre. We have three runners braving the 13-mile...
by AKU | Nov 8, 2019 | Uncategorized
Eurordis Digital School At the start of the month Ciarán our Communications Manager travelled to chilly Gothenburg in Sweden to take part in the inaugural Eurordis Digital School. The workshop was held at the Agrenska Resource Centre for Rare Diseases, a facility...
by AKU | Jul 19, 2019 | Uncategorized
My name is Alev Sen. I’m the main researcher on a study of treatment for AKU in UK healthcare. The study is sociological which means it will focus on the way AKU and relevant treatments are understood and approached. It is not a medical research study...
