by AKU | Apr 3, 2019 | Uncategorized
As many of you will know, we are running the DevelopAKUre clinical trials. These should give us evidence whether nitisinone is effective as a treatment for AKU. This weeks blog explains the third part of our clinical trial, SOFIA. DevelopAKUre is made...
by AKU | Apr 3, 2019 | Uncategorized
Last week the AKU team attended a workshop run by Findacure called ‘Navigating the Highly Specialised Technology Programme’ to improve access to rare disease treatments. This week’s blog talks about the many important messages that were taken from the day. The...
by AKU | Mar 14, 2019 | Uncategorized
Rare Disease Day is an international day designed to raise awareness to the public and those in government about rare conditions and how they affect people across the world. The day falls on the last day of February every year and sees thousands of events...
by AKU | Mar 8, 2019 | Uncategorized
Last Sunday our two runners, Ana and Katja, both completed the Cambridge Half Marathon. They raised a remarkable combined total of £651.82. Our fundraising officer, Juliet, was there on the day and told us more about how the day went. Unfortunately, it was a...
by AKU | Feb 22, 2019 | Uncategorized
The Cambridge Half Marathon is Next Sunday. On the 3rd March our two runners will tackle the roads of Cambridge for the for AKU Society. In this week’s blog, we will introduce you to two of them. Our runners have been training hard, and they are all raising vital...
