Nitisinone programme for international patients

Nitisinone programme for international patients

by | Feb 9, 2024 | AKU Blog, Uncategorized

Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...

AKU Patient Registry FAQ

by | Feb 6, 2024

AKU Patient Registry FAQ What is the AKU patient registry? The patient registry is a global online database created to monitor the progression of AKU, evaluate current treatment and management of the condition, and track the prevalence of patients across the world....

Symptoms

by | Jan 17, 2024

Symptoms The primary symptom of AKU is the darkening of urine upon exposure to air. This discoloration ranges from dark brown to black. However, not all individuals with AKU experience this symptom. Over time, the build-up of homogentisic acid (HGA) causes ochronosis,...

Support

by | Nov 9, 2023

Support The AKU Society aims to provide assistance, information, and resources for all individuals living with AKU. Whether you are a patient, caregiver, or healthcare professional, we offer various forms of support to help you navigate the challenges associated with...

Research and funding policies

by | Oct 18, 2023

Research and funding policies As a patient-group charity, we are committed to ensuring the medical research we fund is always conducted to meet the needs of our community. This is achieved through our membership of the AMRC, our funding peer-review process, and our...