NAC 10th Anniversary Celebration
In June this year, we are celebrating the 10th anniversary of the National Alkaptonuria Centre (NAC), which has played a pivotal role in supporting a [...]
12th International Scientific Conference on AKU Agenda
We are looking forward to welcoming the AKU Scientific community to Brussels next month for our 12th International Scientific Conference on AKU. Thi [...]
12th International Scientific Conference On AKU
We are delighted to announce the return of our cancelled AKU Scientific Conference. The conference was planned for last year but was delayed due to t [...]
Introducing Michael Warne – Fundraising Officer
In this week’s blog, we meet Michael Warne, our new Fundraising Officer. A native of Cambridge, Michael joins the team to fill Juliet’s sizeable shoe [...]
Say Goodbye To Juliet Rowe – Head Of Fundraising
In this week’s blog, we say goodbye to our Head of Fundraising, Juliet Rowe, who started her role in September 2018 – what a whirlwind it’s been! W [...]
Meet Denise Higgins – President of the AKU Society North America
Today's blog is written by one of our hardworking volunteers for our exciting upcoming crowdfunding campaign to raise money for the first Global Blac [...]
Through The Looking Glass- An AKU Story
This week's blog is written by Lyndsay Close and tells her husband Mikes recent AKU journey. Mike will be attending the National AKU Centre (NAC) in [...]
BBC Radio 4 Success
We are honoured and humbled to announce that we have now calculated the final amount raised through our recent BBC Radio 4 charity appeal: including [...]
The National Alkaptonuria Centre (NAC) & COVID-19
Today's blog is written by Lesley Harrison, the Head of Patient Support & Welfare at the AKU Society. The past fifteen months have been tough for [...]
Fred Tranter – The First AKU Patient To Be Operated On?
Today’s blog comes from a letter we received as part of our BBC Radio 4 appeal. Along with a very generous donation, Evelyn Cauwood wrote a remarkabl [...]