by AKU | Mar 7, 2018 | Uncategorized
On Wednesday February 28th the world marked Rare Disease Day. This annual event was set up by EURORDIS, a European alliance of rare disease patient groups, in 2008, to meet a pressing need. There were lots of days representing sufferers of specific...
by AKU | Jan 25, 2018 | Uncategorized
In this week’s blog, we hear about Bob Montague, who went to the National Alkaptonuria Centre (NAC) for the first time this January. Now 70 years old, Bob read law at the London School of Economics, after which he went to work as a solicitor for a major...
by AKU | Jan 3, 2018 | Uncategorized
We at the AKU Society would like to wish everyone a very happy New Year. As 2018 starts, we’d like to give you a preview of what’s in store for this year. On 23rd – 24th April, we will be holding our second International Patient Workshop at the Bluecoat in...
by AKU | Dec 20, 2017 | Uncategorized
So 2017 is finally coming to an end. This year has been one of our busiest yet, with THREE patient workshops, a flurry of fundraising activity and even a bit of globe-trotting to promote the AKU Society! We have lots of plans for 2018, which we will release early in...
by AKU | Dec 13, 2017 | Uncategorized
The AKU Society is currently supporting a PhD research project developed by Tanisha Spratt, of the University of Cambridge’s Department of Sociology. Here, Tanisha answers some of our questions. What were you doing before this PhD? I took a year out between my MA and...
