by AKU | Apr 10, 2024 | AKU Blog
We are excited to announce the launch of our global AKU patient registry. Our registry will play a crucial role in increasing our understanding of AKU and driving research into potential treatments and cures. Over the past year, we have been working with...
by AKU | Feb 15, 2024 | AKU Blog
Our latest blog is written by Liesbeth Desmet, a PhD student at the Vrije Universiteit Brussel (VUB). She recently participated in our early-stage researcher bursary programme to visit the University of Liverpool and expand her knowledge of AKU research: I am a PhD...
by AKU | Feb 9, 2024 | AKU Blog, Uncategorized
Our latest blog looks at CyclePharma and Inceptua Group’s Free Goods Programme which will support AKU patients in 16 countries around the world to access nitisinone. Nitisinone is a vital treatment for AKU, but it is not yet approved or commercially available in many...
by Nick Sireau | Feb 6, 2024
AKU Patient Registry FAQ What is the AKU patient registry? The patient registry is a global online database created to monitor the progression of AKU, evaluate current treatment and management of the condition, and track the prevalence of patients across the world....
