by AKU | Apr 3, 2019 | Uncategorized
Last week, Rare Disease UK launched a report of its recent patient survey, looking at exploring what it is like to live with a rare disease. This week’s blog discusses the many findings that were published in the report. Their report: “The Rare Reality...
by AKU | Sep 12, 2018 | Uncategorized
10th-16th September is Remember a Charity Week. Legacy giving – the gifts which people leave in their wills – are an important source of funding for UK charities. It makes up 6% of the charity sector’s total income. Charities of all sizes rely...
by AKU | Jul 31, 2018 | Uncategorized
New research has proven for the first time that a drug called nitisinone treats AKU in people. For three years, the Liverpool-based National Alkaptonuria Centre (NAC), which gives nitisinone to English and Scottish AKU patients, was running an observational study to...
by AKU | Jun 27, 2018 | Uncategorized
Have you noticed the adverts which appear at the top of Google search result pages? They are created on a platform called Google AdWords. Companies pay millions each year so that their adverts are the first things people see when they use Google. Google for...
by AKU | Jun 13, 2018 | Uncategorized
The AKU Society has signed up to AmazonSmile. AmazonSmile is an affiliate marketing service for the online shopping service Amazon. Affiliate marketing is when a company gives some money to a third party for driving web traffic towards its website. In the case of...
