Osteoarthritis and AKU

Osteoarthritis and AKU

Osteoarthritis is a very common joint disease. When cartilage and underlying bone in the joints break down, sufferers can feel pain, stiffness, numbness and swellings. Fingers and thumbs are most often affected, as well as the neck, lower back, knees and...
SHCA: Our Voice

SHCA: Our Voice

On 21st March, Reece Edmends, our Admin and Communications Officer, went to a meeting of the Specialised Healthcare Alliance. It was held in the beautiful setting of the House of Lords. Here, Reece explains why he went and what was said. The NHS works through services...
Rare Disease Day 2018

Rare Disease Day 2018

On Wednesday February 28th the world marked Rare Disease Day. This annual event was set up by EURORDIS, a European alliance of rare disease patient groups, in 2008, to meet a pressing need. There were lots of days representing sufferers of specific...
A Step for a Step…Everest Base Camp Climb!

A Step for a Step…Everest Base Camp Climb!

So, me (Hannah from the gait lab) and my friend Steven have decided to take on the challenge of climbing to Everest Base Camp on November 14th. Of course, the charity of our choice is the AKU Society. The trek will take 15 days in total and will take us to the highest...
Meet the patient – Antony Kelly

Meet the patient – Antony Kelly

In this week’s blog, we speak to AKU patient Antony Kelly. Antony has been kind enough to tell us about his experience with AKU, sharing his patient story with us he talks us through his initial diagnosis to how AKU affects him today. I was first diagnosed with AKU at...