by AKU | Aug 8, 2017 | Uncategorized
On Wednesday 26th July children with AKU from all over the country travelled to ZSL London Zoo for the AKU Society’s first ever Children’s Workshop. The day was designed to give an insight to children affected by AKU, and their parents, into the disease and what they...
by AKU | Jun 7, 2017 | Uncategorized
This week’s blog comes from the team at Costello Medical. They recently presented an incredible poster of National AKU Centre research at the InSPiRe (Innovation in Small Populations Research) conference.Costello Medical are a Medical Consultancy firm that provides...
by AKU | May 31, 2017 | Uncategorized
On the 19th- 20th May, Oliver and Ciarán travelled to Budapest to represent the AKU Society at the Eurordis – Rare Diseases Europe, membership meeting. The annual event brings together patient groups from all over Europe for its annual general meeting and a day of...
by AKU | Mar 29, 2017 | Uncategorized
On Friday 10th and Saturday 11th March Hannah attended the 3rd UK Genetic Disorders Leadership Symposium. The goal of the symposium was to bring together leaders of UK based genetic disorder charities and other patient advocates to learn from experts in the field,...
by AKU | Mar 22, 2017 | Uncategorized
Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue that was well attended by AKU patients and their family members. In this week’s blog, we talk about how the day went. The day started out with smiles and greeting from the...
