by AKU | Jun 14, 2019 | Uncategorized
The Royal College of Nursing (RCN) Congress is the biggest event of the nursing calendar and attracts more than 4,000 nurses from across the UK and beyond. It provides a platform for nurses to share and develop nursing practice and influence health policy...
by AKU | May 24, 2019 | Uncategorized
Rare disease research has grown significantly over the past decade, yet conferences devoted entirely to this remain scarce. That’s why the REACT Congress, set up by Dr Olivier Menzel and his BlackSwan Foundation, is so important. At its first gathering,...
by AKU | May 3, 2019 | Uncategorized
Exciting news, the AKU Society now accepts Facebook Donations. With 1.8 billion people on Facebook every month, Facebook can be a brilliant place for you to engage with your friends and family and ask them to donate to your AKU fundraiser. In today’s blog,...
by AKU | Apr 18, 2019 | Uncategorized
Today’s blog is written by AKU patient Simon Laxon. In it, he writes about his experience with the disease and how the National Alkaptonuria Centre (NAC) has helped him.Having a rare genetic disorder can be a pretty daunting thing. It can leave a person prone to...
by AKU | Apr 5, 2019 | Uncategorized
On Tuesday the 26th of March, our Patient Support Manager, Hannah, and Fundraising Officer, Juliet, travelled to Luton for the Flying Start and Breaking Down Barriers Health Awareness and Genetics Event. Flying Start and Public Health Luton worked in...
