by AKU | Aug 17, 2016 | Uncategorized
Over the past month, Ciarán has travelled to London and Leicester to attend meetings held by the Specialised Healthcare Alliance (SHCA). In today’s blog, he explains why he attends these meetings and why the work of the SHCA is so important.The SHCA is an...
by AKU | Aug 10, 2016 | Uncategorized
This week is Lydia’s last week at the AKU Society. We are sad to see her go and want to thank her for all she has achieved for AKU patients. In this week’s blog, Lydia shares her highlights, what she has learnt and her plans for the future. It has been a...
by AKU | Aug 3, 2016 | Uncategorized
Last week Eve attended a patient group workshop organised by Genetic Alliance UK, which aimed to understand the patient perspective on important issues affecting rare disease patients in Wales. This week’s blog highlights the key discussions taken from the...
by AKU | Aug 1, 2016 | Uncategorized
On Sunday 2nd October, AKU supporter, Katie will take part in the Cardiff Half Marathon to raise money for AKU. In this week’s blog, Katie shares why she is fundraising for AKU and how she plans to prepare for the big event Hiya, I’m Katie, a 22-year-old...
by AKU | Apr 27, 2016 | Uncategorized
Last week our first International Patient Workshop took place in Liverpool, bringing together the biggest collection of AKU patients ever! In this week’s blog, find out more about the day and the importance of supporting our international patients and their families,...
