by AKU | May 17, 2017 | Uncategorized
The AKU Society is excited to announce that we are now accredited members of the Information Standard. The Information Standard is an initiative supported by NHS England that is designed to improve the quality of health and care information that is available to the...
by AKU | May 10, 2017 | Uncategorized
On April 28th our Admin & Events Officer Robin gave a presentation on local community fundraising events at the Findacure Community Fundraising Workshop. Speaking at the White & Case offices in London, the event had a range of fantastic speakers who...
by AKU | May 5, 2017 | Uncategorized
On 23rd April Joe England successfully completed the London Marathon on behalf of the AKU Society. Joe raised a total of £1725, completing the race in 3:55:57. We are very appreciative of his brilliant effort. Coming up to the race it was not looking good for Joe, he...
by AKU | Mar 29, 2017 | Uncategorized
On Friday 10th and Saturday 11th March Lesley attended the 3rd UK Genetic Disorders Leadership Symposium. The goal of the symposium was to bring together leaders of UK based genetic disorder charities and other patient advocates to learn from experts in the field,...
by AKU | Mar 22, 2017 | Uncategorized
Our Sixth Patient Workshop took place on Saturday. Held at Alexandra Palace it was a great venue that was well attended by AKU patients and their family members. In this week’s blog, we talk about how the day went. The day started out with smiles and greeting from the...
